The Disability Bioethics Reader

✍ Scribed by Joel Michael Reynolds (editor), Christine Wieseler (editor)

Publisher: Routledge
Year: 2022
Tongue: English
Leaves: 419
Edition: 1
Category: Library

No coin nor oath required. For personal study only.

✦ Synopsis

The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability.

Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as:

state-of-the-field analyses of modern medicine, bioethics, and disability theory
health, disease, and the philosophy of medicine
issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states
enhancement and biomedical technology
invisible disabilities, chronic pain, and chronic illness
implicit bias and epistemic injustice in health care
disability, quality of life, and well-being
race, disability, and healthcare justice
connections between disability theory and aging, trans, and fat studies
prenatal testing, abortion, and reproductive justice.

The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies―scholarship that spans the social sciences and humanities―and gives serious consideration to the history of disability activism.

✦ Table of Contents

Cover
Half Title
Title Page
Copyright Page
Table of Contents
List of Tables
List of Figures
Notes on Contributors
Disability Bioethics: Introduction to The Disability Bioethics Reader
PART I: History, Medicine, and Disability
1 A Short History of Modern Medicine and Disability
2 Eugenics, Disability, and Bioethics
3 Theories of Disability
PART II: Bioethics: Past and Present
4 A Critical History of Bioethics
5 Methods of Bioethics
6 Disability Bioethics: From Theory to Practice
PART III: Philosophy of Medicine and Phenomenology
7 Disability and the Definition of Health
8 The Lived Experiences of Illness and Disability
PART IV: Prenatal Testing and Abortion
9 Abortion, Disability Rights, and Reproductive Justice
10 A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from “Species-Typical” Functioning
11 Being Disabled and Contemplating Disabled Children
12 The Wrongs of ‘Wrongful Birth’: Disability, Race, and Reproductive Justice
PART V: Disability, the Life Course, and Well-Being
13 Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics
14 The Case of Chronic Pain
15 Chronic Illness, Well-Being, and Social Values
16 Disability and Age Studies: Obstacles and Opportunities
PART VI: Issues at the Edge and End of Life
17 Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach about Structural Justice and COVID-19
18 Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias
19 Bioethical Issues in Dementia and Alzheimer’s Disease
20 Between “Aid in Dying” and “Assisted Suicide”: Disability Bioethics and the Right to Die
21 Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidism in Suicide and Physician-Assisted Death Debates
PART VII: Disability, Difference, and Health Care
22 Disability Bioethics and Race
23 Bioethics and the Deaf Community
24 Hunger Always Wins: Contesting the Medicalization of Fat Bodies
25 Trans Care within and against the Medical-Industrial Complex
PART VIII: Intellectual and Mental Disabilities
26 Defining Mental Illness and Psychiatric Disability
27 Research Ethics and Intellectual Disability: Finding the Middle Ground between Protection and Exclusion
28 Inconvenient Complications to Patient Choice and Psychiatric Detention: An Auto-ethnographic Account of Mad Carework
29 Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments
PART IX: Disability Bioethics: Connections and New Directions
30 Feminist Theorizing and Disability Bioethics
31 Disability Bioethics and Epistemic Injustice
32 Disability Studies Meets Animal Studies
PART X: The Ends of Medicine: Caring, Curing, and Justice
33 Improving Access within the Clinic
34 The Goals of Biomedical Technology
35 “Why Insist on Justice, Why Not Settle for Kindness?” Kindness, Justice, and Cognitive Disability
36 Selections of Brilliant Imperfection
Index

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