Bioethics and Disability: Toward a Disability-Conscious Bioethics (Cambridge Disability Law and Policy Series)

✍ Scribed by Alicia Ouellette

• Publisher: Cambridge University Press
• Year: 2011
• Tongue: English
• Leaves: 386
• Series: Cambridge Disability Law and Policy Series
• Edition: 1
• Category: Library

✦ Synopsis

Bioethics and Disability provides tools for understanding the concerns, fears, and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children, and adults with disabilities, Bioethics and Disability proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases. Disability-conscious bioethics will bring together disability experts and bioethicists to identify and mitigate disability bias in our health care systems.

✦ Table of Contents

Contents......Page 10
Preface......Page 14
Introduction......Page 16
1 The Struggle: Disability Rights versus Bioethics......Page 27
I. An Introduction to and Short History of the Disability-Rights Community......Page 30
II. Introduction to and a Brief History of Bioethics......Page 44
2 Clashing Perspectives and a Call for Reconciliation......Page 62
I. Perspectives and Teachings in Bioethics......Page 64
II. Perspectives and Teachings from the Disability-Rights Community......Page 72
III. Points of Friction......Page 82
IV. A Call for Peace......Page 83
3 Infancy......Page 87
I. The Case of Sydney Miller......Page 93
A. Views from the Disability Community......Page 101
B. Views from Bioethics......Page 106
II. The Case of Emilio Gonzalez......Page 120
A. Views from the Disability Community......Page 124
B. Views from Bioethics......Page 134
III. Observations......Page 141
4 Childhood......Page 152
I. Lee Larson’s Boys......Page 155
A. Views from the Deaf and Disability Communities......Page 161
B. Views from Bioethics......Page 168
II. The Case of Ashley X......Page 176
A. Views from the Disability Community......Page 184
B. Views from Bioethics......Page 188
III. Observations......Page 198
5 The Reproductive Years......Page 209
I. The Case of Valerie N.......Page 216
A. Views from Bioethics and the Disability Community......Page 221
II. The Case of Bob and Julie Egan......Page 229
A. Views from Bioethics and the Disability Community......Page 235
III. Observations......Page 245
6 The Adult Years......Page 252
I. Mary’s Case......Page 256
A. Views from the Disability Community......Page 257
B. Views from Bioethics......Page 259
II. The Case of Larry McAfee......Page 260
A. Views from the Disability Community......Page 263
B. Views from Bioethics......Page 268
III. The Case of Scott Matthews......Page 273
A. Views from the Disability Community......Page 277
B. Views from Bioethics......Page 278
IV. Observations......Page 281
7 The End of Life......Page 286
I. The Case of Theresa Schiavo......Page 288
II. The Case of Sheila Pouliot32......Page 296
III. Views from the Disability Community......Page 304
IV. Views from Bioethics......Page 310
V. Observations101......Page 313
A. Constitutional Implications......Page 315
B. Discrimination......Page 320
8 Toward a Disability-Conscious Bioethics......Page 330
I. Working toward Reconciliation......Page 332
A. Listening and Understanding......Page 333
B. Acknowledging Fears, Biases, and Alliances......Page 342
C. Unearthing Common Ground......Page 344
II. Taking Action: Developing Disability-Consciousness in Bioethics......Page 346
A. Principles......Page 348
B. Protecting Against Abuse: The Role of Process......Page 357
III. Disability-Conscious Bioethics in Action......Page 359
A. Disability in Infancy: Sydney Miller and Emilio Gonzalez......Page 360
B. Disability in Childhood: Lee Larson’s Boys, Ashley X......Page 365
C. The Reproductive Years: William Peace, Valerie, and the Egans......Page 371
D. The Adult Years: Mary, Larry McAfee, and Scott Matthews......Page 372
E. End-of-Life Decisions: Sheila Pouliot and Terri Schiavo......Page 376
IV. Conclusion – and a Call to Action......Page 377
Index......Page 382

✦ Subjects

Философские дисциплины;Этика и эстетика;Прикладная этика;Биоэтика;