Abstract
Social computing in the domain of health care is a vital, growing activity on the web. Patients, family, and healthcare professionals seek answers and share information. Knowledge management issues about accessing data and cultivating users have not been resolved. This panel has experiences to share based on research into the problems and issues that can separate each of us from personal medical and health records. Sometimes academic research in information science is separated by policies and practices from impacting the design of medical/healthcare world's information applications. Reliability and quality in health information and knowledge depend on bridging this gap.
Panelists and attendees will discuss four aspects of the gap between research and practice. Panelists want to show how their IS research may help improve your access to records. During audience interaction, everyone will be asked to concentrate on the perspective of the PATIENT by asking these questions:
How do I know where my medical information comes from and goes in a system?
If I am just the patient, can I find the information I need?
As part of a large group of patients (or infected population), how can my data be shared for the public good?
What are the challenges and opportunities of using existing health information for the public good?
Format: Presentations (10 min. each) with Discussion (during and after panel presentations).