✦ LIBER ✦

Patient and caregiver quality of life in Huntington's disease

✍ Scribed by Rebecca E. Ready; Melissa Mathews; Anne Leserman; Jane S. Paulsen

Publisher: John Wiley and Sons
Year: 2008
Tongue: English
Weight: 67 KB
Volume: 23
Category: Article
ISSN: 0885-3185
DOI: 10.1002/mds.21920

No coin nor oath required. For personal study only.

✦ Synopsis

Abstract

Little is known about subjective perceptions of quality of life (QOL) in Huntington's disease (HD). The current study determined correlates of patient and caregiver QOL and assessed change over time. Participants were 22 patient‐caregiver dyads, who rated QOL at baseline and 6 months later. Overall, patients' functional and cognitive impairment were significantly correlated with patient and caregiver QOL. Neuropsychiatric symptoms had differential impact on patient and caregiver QOL. Furthermore, when patients recalled their QOL about a previous time, their recall may have been negatively biased. Clinical implications of results are discussed. Future work is needed because subjective QOL is an important outcome measure in therapeutic trials. © 2008 Movement Disorder Society

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