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Optimizing health care for children with spina bifida

✍ Scribed by Gregory S. Liptak; Ahmad El Samra

Publisher
Wiley (John Wiley & Sons)
Year
2010
Tongue
English
Weight
160 KB
Volume
16
Category
Article
ISSN
1940-5510

No coin nor oath required. For personal study only.

✦ Synopsis

Abstract

The health care needs of children with spina bifida are complex. They need specialists, generalists, and an integrated system to deliver this complex care and to align and inform all the providers. Most research in spina bifida has been focused on narrow medical outcomes; it has been noncollaborative, based on small samples of convenience, with no comparison groups, and without consistent standards of measurement. Models of health, like the World Health Organization International Classification of Functioning, Disability, and Health Model can help to broaden the scope of future research. Using methods from other pediatric conditions like the patient registry (cystic fibrosis), gene bank (autism), and collaborative research (leukemia), researchers can improve the quality of future studies. Research questions related to the process of care and to specific nonsurgical conditions associated with spina bifida are reviewed in this article. Β© 2010 Wiley‐Liss, Inc. Dev Disabil Res Rev 2010;16:66–75.

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