𝔖 Bobbio Scriptorium
✦   LIBER   ✦

Health related quality of life measures in Friedreich Ataxia

✍ Scribed by Elizabeth Epstein; Jennifer M. Farmer; Amy Tsou; Susan Perlman; S.H. Subramony; Christopher M. Gomez; Tetsuo Ashizawa; George R. Wilmot; Katherine Mathews; Robert B. Wilson; Laura J. Balcer; David R. Lynch


Book ID
119302714
Publisher
Elsevier Science
Year
2008
Tongue
English
Weight
179 KB
Volume
272
Category
Article
ISSN
0022-510X

No coin nor oath required. For personal study only.


πŸ“œ SIMILAR VOLUMES


Clinical measures of dysarthria in Fried
✍ Arunjot Singh; Elizabeth Epstein; Lauren M. Myers; Jennifer M. Farmer; David R. πŸ“‚ Article πŸ“… 2009 πŸ› John Wiley and Sons 🌐 English βš– 437 KB

## Abstract Dysarthria in Friedreich Ataxia (FA) is difficult to quantify. This study evaluated a series of performance measures for speech in 22 patients with genetically confirmed FA and 16 age‐matched controls. Tests included the PATA examination, the PATAKA examination, the Oral Motor component

Health-related quality of life in sporad
✍ Michael Abele; Thomas Klockgether πŸ“‚ Article πŸ“… 2007 πŸ› John Wiley and Sons 🌐 English βš– 94 KB

## Abstract Despite progressive disability in sporadic adult‐onset ataxia (SAOA), little is known about patients' assessment of their ataxic disorder and its impact on health‐related quality of life (Hr‐QoL). This study investigated Hr‐QoL by means of the following self‐administered scales: Pittsbu

Health-related quality-of-life measures
✍ Christine Eiser; Imogen Cotter; Patrick Oades; David Seamark; Ronald Smith πŸ“‚ Article πŸ“… 1999 πŸ› John Wiley and Sons 🌐 French βš– 105 KB πŸ‘ 2 views

Our purpose is to report the development and psychometric properties of a generic computer-delivered measure of health-related quality of life (HRQL) suitable for children aged 6 to 11 years, the Exeter HRQL scale (EHRQL). The theoretical model adopted is based on a definition of HRQL which assumes