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Conceptualization and measurement of family outcomes associated with families of individuals with intellectual disabilities

✍ Scribed by Turnbull, Ann P. ;Summers, Jean Ann ;Lee, Suk-Hyang ;Kyzar, Kathleen

Publisher
John Wiley and Sons
Year
2007
Tongue
English
Weight
253 KB
Volume
13
Category
Article
ISSN
1080-4013

No coin nor oath required. For personal study only.

✦ Synopsis

Abstract

The purpose of this review is to (a) document the current status of conceptualizing and measuring family outcomes related to having a member with an intellectual disability and (b) determine the extent to which family research focuses on internal family characteristics as contrasted to external family support. The reviewers collected 28 articles using the terms well‐being, adaptation, family functioning, or family quality of life in the title. Results of our analyses are presented as a comparison between well‐being, adaptation, and family functioning articles in one group and family quality of life articles in a second group. Both groups lacked explicit conceptual definitions, theory, and random/representative samples. The articles placed an undue emphasis on maternal participation, and tended to report a single family member score as representative of the whole family. Two major differences between the groups was a tendency for family quality of life studies to be grounded in conceptual frameworks and focus on new instrument development. Recommendations for future research directions are included. Β© 2007 Wiley‐Liss, Inc. MRDD Research Reviews 2007;13:346–356.

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