๐”– Bobbio Scriptorium
โœฆ   LIBER   โœฆ

What is a meaningful result? Disclosing the results of genomic research in autism to research participants

โœ Scribed by Miller, Fiona Alice; Hayeems, Robin Zoe; Bytautas, Jessica Peace


Book ID
109849378
Publisher
Nature Publishing Group
Year
2010
Tongue
English
Weight
225 KB
Volume
18
Category
Article
ISSN
1018-4813

No coin nor oath required. For personal study only.


๐Ÿ“œ SIMILAR VOLUMES


Feedback of individual genetic results t
โœ Annelien L. Bredenoord; N. Charlotte Onland-Moret; Johannes J.M. Van Delden ๐Ÿ“‚ Article ๐Ÿ“… 2011 ๐Ÿ› John Wiley and Sons ๐ŸŒ English โš– 141 KB

This article discusses whether and when researchers have a moral obligation to feedback individual genetic research results. This unsettled debate has rapidly gained in urgency in view of the emergence of biobanks and the advances in next-generation sequencing technology, which has the potential to

Patients' willingness to participate in
โœ Roxane Crowley; David Casarett ๐Ÿ“‚ Article ๐Ÿ“… 2003 ๐Ÿ› John Wiley and Sons ๐ŸŒ English โš– 86 KB ๐Ÿ‘ 1 views

## Abstract ## BACKGROUND The growth of cancer symptom management research has been limited by challenges of slow recruitment and underenrollment. One potential solution to this problem is the use of screening questions that identify patients who are interested in participating in research. The go

Disclosure of the right of research part
โœ Conrad V. Fernandez; Eric Kodish; Shaureen Taweel; Susan Shurin; Charles Weijer ๐Ÿ“‚ Article ๐Ÿ“… 2003 ๐Ÿ› John Wiley and Sons ๐ŸŒ English โš– 74 KB ๐Ÿ‘ 1 views

## Abstract ## BACKGROUND The offer of return of research results to study participants has many potential benefits. The current study examined the offer of return of research results by analyzing consent forms from 2 acute lymphoblastic leukemia studies of the 235 institutional members of the Chi