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Using survival methods to estimate age-at-onset distributions for genetic diseases with an application to Huntington disease

✍ Scribed by Dr. L. Adrienne Cupples; Norma C. Terrin; Richard H. Myers; Ralph B. D'Agostino; D. C. Rao


Publisher
John Wiley and Sons
Year
1989
Tongue
English
Weight
724 KB
Volume
6
Category
Article
ISSN
0741-0395

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✦ Synopsis


Two important considerations in genetic disease are the risk of inheriting the gene for a disease and the age-at-onset distribution among those inheriting it. This paper describes the use of survival data analytic methods to estimate these entities. When a sample consists of children and/or siblings of affected individuals, standard lifetable methods such as Kaplan-Meier techniques can be applied. The desired estimators are functions of the Kaplan-Meier estimator and their properties are derived using the invariance principle and delta methods. A discussion of the underlying assumptions and estimators of standard errors and mean onset age are given. In an application to Huntington disease, the risk ( k SE) of inheriting the gene for disease among children of a singly affected parent is estimated to be 0.499 2 0.020 and the estimated mean onset age ( 2 SE) is 45.6 2 0.7.