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To know or not to know, disclosure of a newborn carrier screening test result for cystic fibrosis

✍ Scribed by Vernooij-van Langen, Annette M.M.; Reijntjens, Sandra; van der Pal, Sylvia M.; Loeber, J. Gerard; Dompeling, Edward; Dankert-Roelse, Jeannette E.

Book ID: 123184387
Publisher: Elsevier Science
Year: 2013
Tongue: English
Weight: 155 KB
Volume: 56
Category: Article
ISSN: 1769-7212
DOI: 10.1016/j.ejmg.2013.01.006

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Early experience in centers offering population screening for cystic fibrosis (CF) has shown that few of the public are taking advantage of the offer [Miller, 1993: New Scientist 139:6]. There is similar low utilization among adult CF sibs [Fanos and Johnson, 1993: Am J Hum Genet 53A511. The purpose