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The decision to continue: The experiences and needs of parents who receive a prenatal diagnosis of holoprosencephaly

✍ Scribed by Redlinger-Grosse, Krista ;Bernhardt, Barbara A. ;Berg, Kate ;Muenke, Maximilian ;Biesecker, Barbara B.


Publisher
John Wiley and Sons
Year
2002
Tongue
English
Weight
96 KB
Volume
112
Category
Article
ISSN
0148-7299

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## Abstract Many studies have shown that, for families who are given the diagnosis of a disability, satisfaction with disclosure is an important element. Information given and the attitudes of the disclosing health professionals during this critical period have a significant effect on the coping an