Promoting the use of standard questions
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Denise Shereff; James Andrews; Alice Graves; Rachel Richesson
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Article
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2011
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Wiley (John Wiley & Sons)
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English
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The Patient Registry Item Specifications and Metadata (PRISM) library was developed with funds from the American Recovery and Reinvestment Act (ARRA) with the primary purpose of supporting the use of standardized questions in rare disease patient registries. A patient registry is for a method of col