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Psychosocial impact of predictive testing for myotonic dystrophy type 1

✍ Scribed by Claude Prévost; Suzanne Veillette; Michel Perron; Claude Laberge; Carmen Tremblay; Julie Auclair; Josée Villeneuve; Marc Tremblay; Jean Mathieu


Publisher
John Wiley and Sons
Year
2003
Tongue
English
Weight
136 KB
Volume
126A
Category
Article
ISSN
1552-4825

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Although a support person is required by many centers during the predictive testing protocol for Huntington disease (HD), little is known about the psychosocial impact of predictive testing on persons serving in this role. Eighteen adults who were support persons during predictive HD testing in one