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Psychosocial aspects of fabry disease and their impact on optimal disease management

โœ Scribed by Atul B. Mehta


Book ID
114122950
Publisher
Elsevier Science
Year
2009
Tongue
English
Weight
316 KB
Volume
31
Category
Article
ISSN
0149-2918

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Although a support person is required by many centers during the predictive testing protocol for Huntington disease (HD), little is known about the psychosocial impact of predictive testing on persons serving in this role. Eighteen adults who were support persons during predictive HD testing in one