✦ LIBER ✦

Predictive genetic testing of adolescents for Huntington disease: A question of autonomy and harm

✍ Scribed by Fiona H. Richards

Publisher: John Wiley and Sons
Year: 2008
Tongue: English
Weight: 52 KB
Volume: 146A
Category: Article
ISSN: 1552-4825
DOI: 10.1002/ajmg.a.32477

No coin nor oath required. For personal study only.

📜 SIMILAR VOLUMES

Reply to Richards: “Predictive Genetic T

Reply to Richards: “Predictive Genetic Testing of Adolescents for Huntington Disease: A Question of Autonomy and Harm”

✍ Rony E. Duncan; Lynn Gillam; Julian Savulescu; Robert Williamson; John G. Rogers 📂 Article 📅 2008 🏛 John Wiley and Sons 🌐 English ⚖ 41 KB

Psychosocial impact of predictive testin

Psychosocial impact of predictive testing for Huntington disease on support persons

✍ Williams, Janet K. ;Schutte, Debra L. ;Holkup, Patricia A. ;Evers, Catherine ;Mu 📂 Article 📅 2000 🏛 John Wiley and Sons 🌐 English ⚖ 110 KB 👁 1 views

Although a support person is required by many centers during the predictive testing protocol for Huntington disease (HD), little is known about the psychosocial impact of predictive testing on persons serving in this role. Eighteen adults who were support persons during predictive HD testing in one

Impact on couple relationships of predic

Impact on couple relationships of predictive testing for Huntington disease: A longitudinal study

✍ Richards, Fiona ;Williams, Katrina 📂 Article 📅 2004 🏛 John Wiley and Sons 🌐 English ⚖ 98 KB 👁 1 views

Dilemmas of anonymous predictive testing

Dilemmas of anonymous predictive testing for Huntington disease: Privacy vs. optimal care

✍ Burgess, Michael M.; Adam, Shelin; Bloch, Maurice; Hayden, Michael R. 📂 Article 📅 1997 🏛 John Wiley and Sons 🌐 English ⚖ 9 KB 👁 2 views

Some persons at risk for Huntington disease (HD) seek predictive testing under the protection of anonymity to reduce the risk of insurance discrimination for themselves and their families. While Canadian and European health care systems seem to limit insurance discrimination to life and disability i

Impact of genetic testing for Huntington

Impact of genetic testing for Huntington disease on the family system

✍ Sobel, Susan K.; Cowan, D. Brookes 📂 Article 📅 2000 🏛 John Wiley and Sons 🌐 English ⚖ 32 KB 👁 2 views

The psychological impact of DNA predictive testing on asymptomatic individuals at risk for Huntington disease (HD) has received considerable attention since the advent of the procedure in 1993. This study examined the impact of such testing on families from the families' perspective. Individuals asy

Reactions to predictive testing in Hunti

Reactions to predictive testing in Huntington disease: Case reports of coping with a new genetic status

✍ Wahlin, Tarja-Brita Robins; Lundin, Anders; Bäckman, Lars; Almqvist, Elisabeth; 📂 Article 📅 1997 🏛 John Wiley and Sons 🌐 English ⚖ 35 KB 👁 2 views

A predictive testing program for Huntington disease has been available in Stockholm, Sweden since October 1990. Psychosocial assessments were performed throughout the testing program to evaluate the impact of the risk situation itself and the effect of predictive testing, and to identify those indiv