PIH40 Designing a Disease-Specific Patient Reported Outcome (PRO) for a Rare Disease: Assessing the Reliability, Validity, and Responsiveness of the Hunter Syndrome - Functional Outcomes for Clinical Understanding Scale (HS-Focus)

✍ Scribed by I. Wiklund; M. Raluy; Y. Jangelind; D.A.H. Whiteman; A.M. Conway; F. Pang; D.E. Stull; W.H. Chen

• Book ID: 119310777
• Publisher: John Wiley and Sons
• Year: 2011
• Tongue: English
• Weight: 58 KB
• Volume: 14
• Category: Article
• ISSN: 1098-3015
• DOI: 10.1016/j.jval.2011.08.943