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PatientsLikeMe: Social norms and information values in an online health support group

✍ Scribed by Gary Burnett; Mia Liza A. Lustria; Juliann Cortese; Michelle Kazmer; Jeana Frost; Ji-Hyun Kim; Jinxuan Ma


Publisher
Wiley (John Wiley & Sons)
Year
2009
Tongue
English
Weight
39 KB
Volume
46
Category
Article
ISSN
0044-7870

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✦ Synopsis


Abstract

Reports on a qualitative study of an asynchronous discussion forum hosted by PatientsLikeMe (PLM), an online community supporting 2,300 patients with chronic diseases like ALS (Lou Gehrig's Disease). Examines selected posts marked as “of particular interest” by the researchersas the basis of an analysis of the PLM group's social norms and information values, as reflected by the content of participants' posts.