Patient knowledge in inflammatory bowel disease: CCKNOW, how much do they know?
✍ Scribed by Rhys Owain Butcher; Tina L. Law; Roger C. Prudham; Jimmy K. Limdi
- Publisher
- John Wiley and Sons
- Year
- 2011
- Tongue
- English
- Weight
- 49 KB
- Volume
- 17
- Category
- Article
- ISSN
- 1078-0998
No coin nor oath required. For personal study only.
✦ Synopsis
We read with interest the excellent article by Benchimol et al 1 on knowledge assessment in adolescents with inflammatory bowel disease (IBD). Despite improved understanding of the pathogenesis of IBD, novel therapies, and an unprecedented explosion in information and technology, a key and unanswered question is whether these advances have translated into a meaningful improvement in patients' understanding of disease.
We report a British experience aimed at understanding patient knowledge of disease using the validated Crohn's and Colitis Knowledge (CCKNOW) questionnaire. The 24-item questionnaire has a good readability score and provides a robust index of overall knowledge in assessing patient knowledge and education programs.
We conducted a prospective questionnaire-based study of 250 consecutive patients attending IBD clinics at our hospital. Clinical data including patient demographics, educational level, and disease duration were recorded. The CCKNOW questionnaire was used to assess IBD-specific knowledge relating to disease. The study was approved by our Institutional Review Board.
Fourteen incomplete questionnaires were excluded from analysis. In all, 120 of the 236 IBD patients reviewed were female. Ninety-three percent were Caucasian and the median age range was 45-64 years.