Eighteen unaffected families with an affected child were interviewed in their homes to chronicle the experiences of parents in receiving their child's diagnosis of neurofibromatosis (NF) 1. Families were recruited through NF support groups and the Genetics Departments of two metropolitan hospitals i
Parents' responses to disclosure of genetic test results of their children
β Scribed by Grosfeld, Frans J.M. ;Beemer, Frits A. ;Lips, Cornelis J.M. ;Hendriks, Karin S.W.H. ;ten Kroode, Herman F.J.
- Publisher
- John Wiley and Sons
- Year
- 2000
- Tongue
- English
- Weight
- 105 KB
- Volume
- 94
- Category
- Article
- ISSN
- 0148-7299
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