Impact of Measures to Enhance the Value of Observational Surveys in Rare Diseases: The Fabry Outcome Survey (FOS)

✍ Scribed by Joe T.R. Clarke; Roberto Giugliani; Gere Sunder-Plassmann; Perry M. Elliott; Guillem Pintos-Morell; Elizabeth Hernberg-Ståhl; Maria Malmenäs; Michael Beck

• Book ID: 119309763
• Publisher: John Wiley and Sons
• Year: 2011
• Tongue: English
• Weight: 687 KB
• Volume: 14
• Category: Article
• ISSN: 1098-3015
• DOI: 10.1016/j.jval.2011.05.002