If you build a rare disease registry, will they enroll and will they use it? Methods and data from the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD)

✍ Scribed by James E. Hilbert; John T. Kissel; Elizabeth A. Luebbe; William B. Martens; Michael P. McDermott; Donald B. Sanders; Rabi Tawil; Charles A. Thornton; Richard T. Moxley III

• Book ID: 116351129
• Publisher: Elsevier Science
• Year: 2012
• Tongue: English
• Weight: 472 KB
• Volume: 33
• Category: Article
• ISSN: 1551-7144
• DOI: 10.1016/j.cct.2011.11.016