โ Scribed by John L. Hamerton
No coin nor oath required. For personal study only.
The Standing Committee of the Paris Conference on the Standardization in Human Cytogenetics has from its inception considered the question of the desirability and feasibility of human cytogenetie registries as being within its terms of reference. The Committee with the support of the National Foundation sponsored a Workshop on Human Cytogenetic Registries on April 7th and 8th in Edinburgh, Scotland. This Workshop was attended by nine individuals who are in charge of regional or national registries, together with consultants and members of the Standing Committee.
The Standing Committee voted to accept the majority recommendations of the Workshop group which were as follows: 1. That an International Cytogenetic Registry should not be set up at this date. At some future date, however, an International Registry might well be of value.
If so, the International Registry should be established only after very careful planning and under the guidance of an International Advisory Committee. 2. The establishment o] regional and national cytogenetic registries should be encouraged, as should cooperation between them and existing registries.
This Advisory Committee should, among other things; (a) establish guidelines and recommend standards for human cy~ogenetic registries; (b) facilitate standardization of data collection for cytogenetie registries; (c) compile, update and publish a list of cytogenetic registries, together with summaries of their aims, objectives and key elements.
International organizations such as the World Health Organization and appropriate National agencies o] these developments and solicit their cooperation and support. In order to expedite recommendation No. 3 the Standing Committee established an International Advisory Committee on Human Cytogenetie Registries under the Chairmanship of Dr. J. R. Miller. Membership of the Advisory Committee was as follows: Dr. F. Hecht, Dr. J. ~qielsen, Dr. Patricia gacobs and Dr. J. Lindsten (exofficio--representing Standing Committee). Anyone wishing to communicate with the Advisory Committee on Human Cytogenetic Registries should contact Dr.
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