Hospice Care for Children

✍ Scribed by Ann Armstrong-Dailey, Sarah Z. Goltzer

• Publisher: Oxford University Press, USA
• Year: 1993
• Tongue: English
• Leaves: 311
• Edition: 1
• Category: Library

✦ Synopsis

Children with life-threatening and terminal illnesses--and their families--require a unique kind of care to meet a wide variety of needs. This book provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment: organizational structure, clinical issues, the complementary roles of medical professionals and volunteers, the particular circumstances of neonatal and AIDS-related deaths, pain and symptom control, and bereavement support. It explains the developmental stages of children's understanding of death and offers useful advice about school programs and the helpful role of children's literature. Special consideration is given to the need to provide support to hospice staff as well as to grieving parents and surviving siblings. The book is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.

✦ Table of Contents

Contents......Page 14
Contributors......Page 16
Introduction......Page 20
I: Issues in Clinical Management......Page 24
1. Children's Understanding of Death......Page 26
2. Pain and Symptom Control......Page 39
3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence......Page 77
4. Neonatal Death......Page 92
5. Care for the Child with HIV Infection and AIDS......Page 102
II: Support Systems......Page 122
6. Family Dynamics......Page 124
7. Caring for Bereaved Parents......Page 139
8. After a Child Dies: Helping the Siblings......Page 157
9. Lessons in Grief: A Practical Look at School Programs......Page 171
10. Role of the Primary Physician......Page 189
11. Staff Support......Page 201
12. The Volunteer Component......Page 215
III: Appendix......Page 234
An Early Model of Care......Page 236
A Home Care Program......Page 248
Palliative Care in an Inpatient Hospital Setting......Page 265
Children's Literature on Death......Page 283
Additional Resources......Page 302
D......Page 306
H......Page 307
P......Page 308
S......Page 309
V......Page 310
W......Page 311