Governing Medical Knowledge Commons

✍ Scribed by Katherine J. Strandburg (editor), Brett M. Frischmann (editor), Michael J. Madison (editor)

• Publisher: Cambridge University Press
• Year: 2017
• Tongue: English
• Leaves: 442
• Series: (Cambridge Studies on Governing Knowledge Commons)
• Category: Library

✦ Synopsis

Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.

✦ Table of Contents

Cover
Half-title page
Series page
Title page
Copyright page
Contents
List of
Contributors
Knowledge Commons and the Road to Medical Commons
1 The Knowledge Commons Framework
2 Leviathan in the Commons: Biomedical Data and the State
3 Centralization, Fragmentation, and Replication in the Genomic Data Commons
4 Genomic Data Commons
5 Population Biobanks’ Governance: A Case Study of Knowledge Commons
6 The Sentinel Initiative as a Knowledge Commons
7 Cancer: From a Kingdom to a Commons
8 The Greatest Generational Impact: Open Neuroscience as an Emerging Knowledge Commons
9 Better to Give Than to Receive: An Uncommon Commons in Synthetic Biology
10 Governance of Biomedical Research Commons to Advance Clinical Translation: Lessons from the Mouse Model Community
11 Constructing Interdisciplinary Collaboration: The Oncofertility Consortium as an Emerging Knowledge Commons
12 The Application of User Innovation and Knowledge Commons Governance to Mental Health Intervention
13 Challenges and Opportunities in Developing and Sharing Solutions by Patients and Caregivers: The Story of a Knowledge Commons for the Patient Innovation Project
14 Chronic Disease, New Thinking, and Outlaw Innovation: Patients on the Edge in the Knowledge Commons
15 The North American Mitochondrial Disease Consortium: A Developing Knowledge Commons
16 The Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR): An Emerging Knowledge Commons
Governing Knowledge Commons: An Appraisal