Genetic Data And The Law: A Critical Perspective On Privacy Protection Genetic Data And The Law

✍ Scribed by Mark Taylor

• Publisher: Cambridge University Press
• Year: 2012
• Tongue: English
• Leaves: 246
• Series: Cambridge Bioethics And Law
• Edition: 1st Edition
• Category: Library

✦ Synopsis

Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.

✦ Table of Contents

Cover......Page 1
Genetic Data and the Law - Half title page......Page 2
Series page......Page 3
Genetic Data and the Law - Title page......Page 6
Copyright page......Page 7
Dedication......Page 8
Contents......Page 9
Preface......Page 12
1 - Introduction......Page 15
Part I - The context......Page 25
2 - Privacy......Page 27
3 - Genetic data......Page 55
4 - The law......Page 76
Part II - The critique......Page 115
5 - Data in common......Page 117
6 - Anonymity......Page 145
7 - Human tissue......Page 171
8 - Genetic discrimination......Page 194
Part III - The consequence......Page 213
9 - Potential, promise and possibility......Page 215
Index......Page 236

✦ Subjects

Medical Genetics: Law And Legislation; Medical Records: Access Control; Genetic Engineering: Law And Legislation; Biotechnology: Law And Legislation; Human Chromosome Abnormalities: Diagnosis: Law And Legislation; Human Genetics: Government Policy; Privacy, Right Of; Data Protection: Law And Legislation