𝔖 Bobbio Scriptorium
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Ethical issues in research with dementia patients

✍ Scribed by Dr. Ron L. P. Berghmans; Ruud H. J. Ter Meulen

Publisher
John Wiley and Sons
Year
1995
Tongue
English
Weight
476 KB
Volume
10
Category
Article
ISSN
0885-6230

No coin nor oath required. For personal study only.

✦ Synopsis

The conduct of scientific research involving dementia patients is an ethically complex issue. Increased insight into the causes and aetiology of this condition can be of paramount importance for future patients and society as a whole. However, the rights and interests of vulnerable and incompetent persons as subjects in research make ethical boundaries imperative. A distinction should be made between research that may directly be of benefit to the subject (therapeutic research) and research in which no direct benefit for the patient can reasonably be expected (nontherapeutic research). The majority of the research with dementia patients falls within the latter category, Several ethical issues are discussed, and special attention is paid to the ethical justification of non-therapeutic research involving incompetent subjects suffering from dementia. Five conditions that should be met in order to make this kind of research ethically acceptable are formulated. KEY WORDSdementia; research; ethics CCC 08854230/95/08064745 0 1995 bv John Wilev & Sons. Ltd.

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