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Disclosure of individual genetic data to research participants: the debate reconsidered

✍ Scribed by Annelien L. Bredenoord; Hester Y. Kroes; Edwin Cuppen; Michael Parker; Johannes J.M. van Delden

Book ID
113933147
Publisher
Elsevier Science
Year
2011
Tongue
English
Weight
150 KB
Volume
27
Category
Article
ISSN
0168-9525

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This article discusses whether and when researchers have a moral obligation to feedback individual genetic research results. This unsettled debate has rapidly gained in urgency in view of the emergence of biobanks and the advances in next-generation sequencing technology, which has the potential to