Coping with Crisis and Handicap

✍ Scribed by Genevieve V. Foley (auth.), Aubrey Milunsky MB.B.Ch., M.R.C.P., D.C.H. (eds.)

• Publisher: Springer US
• Year: 1981
• Tongue: English
• Leaves: 362
• Edition: 1
• Category: Library

✦ Synopsis

For over 20 years I have accepted the challenge and had the privilege of caring for sick children, agonizing with their parents during periods of serious illness, which were sometimes fatal. Because of my particular interest in and concern about birth defects and genetic disease, many of these children had severe disabling handicaps, which were often genetic and included mental retardation. Hence care of these children and their families was often complicated by the presence of serious or profound genetic defects. The initial realization of the nature of the disorder invariably led to emotional . difficulties and inevitably later spawned chronic distress. For some children inexorable deterioration led to untimely deaths, while the parents agonized over their handi­ capped, chronically ill, or defective-but nevertheless loved---

✦ Table of Contents

Front Matter....Pages i-xv
The Child Dying in the Hospital....Pages 1-10
Care of the Dying Child at Home....Pages 11-22
The Bereaved Parent....Pages 23-36
Where Was God?....Pages 37-49
The Clergyman’s Role in Grief Counseling....Pages 51-59
Care in Chronic Fatal Genetic Disease....Pages 61-77
Explaining Death to Children....Pages 79-100
Coping with Suicide in the Family....Pages 101-111
Treating the Person Confronting Death....Pages 113-159
Ethics and the Care of the Child with Terminal Illness....Pages 161-175
Kids Are People Too, Sometimes....Pages 177-188
Coping with Handicap....Pages 189-204
Helping Parents Cope with a Profoundly Mentally Retarded Child....Pages 205-215
The Involvement of Siblings of Children with Handicaps....Pages 217-228
Reaching Autistic Children....Pages 229-248
Coping with Sexuality and Sexual Vulnerability in Developmentally Disabled Individuals....Pages 249-267
A Little Bit of Awkward....Pages 269-280
Teaching Teachers to Cope....Pages 281-286
Coping Strategies of Children and Their Families....Pages 287-297
Law and the Handicapped....Pages 299-306
Societal Perspectives....Pages 307-316
Back Matter....Pages 317-358

✦ Subjects

Science, general