𝔖 Bobbio Scriptorium
✦   LIBER   ✦

Carers, ethics and dementia: a survey and review of the literature

✍ Scribed by Julian C. Hughes; Tony Hope; Julian Savulescu; Sue Ziebland

Publisher
John Wiley and Sons
Year
2002
Tongue
English
Weight
70 KB
Volume
17
Category
Article
ISSN
0885-6230

No coin nor oath required. For personal study only.

✦ Synopsis

Abstract

Background

Much has been written on ethical issues in dementia, but usually from the point of view of the various professionals involved. Whilst there has been an increasing amount of interest in the psychosocial problems that face the carers of people with dementia, the ethical nature of some of these problems has largely been ignored.

Objective

To review the literature on ethical issues in dementia from the perspective of the main, non‐professional carers of people with dementia.

Method

A systematic literature search using Medline, Clinpsych and CINAHL databases between 1982 and 2000. A pilot study of carers.

Results

The lay perspective provides both a wide variety of issues and unique approaches. Although in the literature quantitative research answers some questions, it is qualitative research that deepens our understanding of the issues from the perspective of carers.

Conclusion

It is particularly qualitative research that brings out the ethical issues for carers, which tend to be more varied than the ethical issues raised in the professional literature. Awareness of such issues could inform and shape the support given to carers. Copyright Β© 2002 John Wiley & Sons, Ltd.

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