Benefit Sharing || Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia
✍ Scribed by Schroeder, Doris; Cook Lucas, Julie
- Book ID
- 120447456
- Publisher
- Springer Netherlands
- Year
- 2013
- Tongue
- Dutch
- Weight
- 426 KB
- Edition
- 2013
- Category
- Article
- ISBN
- 9400762054
No coin nor oath required. For personal study only.
✦ Synopsis
Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to benefit sharing. A series of recommendations address possible ways forward to achieve justice for research participants in low- and middle-income countries.