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A family perspective of the value of a diagnosis for intellectual disability: experiences from a genetic research study

✍ Scribed by Helen Statham; Maggie Ponder; Martin Richards; Nina Hallowell; Frances Lucy Raymond


Book ID
111100160
Publisher
John Wiley and Sons
Year
2010
Tongue
English
Weight
162 KB
Volume
39
Category
Article
ISSN
1354-4187

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Parental perceived value of a diagnosis
✍ Nancy L. Makela; Patricia H. Birch; Jan M. Friedman; Carlo A. Marra πŸ“‚ Article πŸ“… 2009 πŸ› John Wiley and Sons 🌐 English βš– 122 KB πŸ‘ 1 views

## Abstract Although new technologies such as array genomic hybridization to diagnosis the cause of intellectual disabilities (ID) are exciting to clinicians, the value of an etiological diagnosis to the families of affected children is largely unknown. Parents of 20 children with ID, 10 with and 1